My mother is at a moderate stage of vascular dementia. She currently lives alone, but we're not sure how much longer that can last. At this point, my sister has been allowing my Mom to babysit her 5yo daughter, 3 days per week, much to my chagrin. Sis is obviously in a certain level of denial because she and mom are cut from the same cloth; they make decisions from a place of emotion, rather than logic. While I recognize that emotion is a significant factor, we are grapling with some saftey issues (driving, etc.) that need to be addressed. My sister claims that she does all the work, so she gets more "say" in the decisions. By work, I mean she is using her 5yo to report back to her what Grammy has been doing that day. Sis also fills mom's meds once a week. Because she's more emotionally connected to Mom, she's able to influence mom as well. My brother and I have offered our help in any way we can, but essentially, our help is refused or even discourage if it's not done the exact way Mom and sis want it. I feel like I'm beating my head against a brick wall.
I'm not willing to sacrafice my marriage, sanity, job, and kids (1yo, 6yo) to live in Mom/Sis's emotionally draining denial. When I establish boundries for the kind of help I'm willing to provide, I'm told by my sister to "just get out of it!". I'm willing to put action behind my opinions, but how am I supposed to provide care when I'm being sabotaged? My sister, in her denial about the severity and reality of Mom's dementia, will agree to certain conditions with my brother and I. When we try to put them into practice, Sis will ultimately do whatever she wants and just not tell us about it. She purposefully leaves us out of appointments (tells us at the last minute) or siutations with Mom because she doesn't want us to weigh in. Then, when we do try to help, we are berated for not helping out enough!
I see so many articles about how to get "deadbeat" siblings to help. What about those that do, but are at the mercy of a dictator sibling who wants to rule under emotional law?
My situation is duel. My daughter returned home with 2 beautiful girls . She has progressive systematic disabilities evolving her body and mind. A very good person but in need of increasing structure, limits, and physical support.
She eventually gave custody to her sister All us females bought a home in an excellent ISD for the girls after grampa passed.
I figure I'm next to need caregiving. This will leave my healthy daughter and my involved son to carry the weight. So I'm thinking, learning, planning, and tring my best to ease their burden.
I've added strategies for getting this road tripping mom off road when it's time and bookmarked this site. So again, thank you for giving all the follow-up. And thank all of you who responded.
You need to believe your contributions impact positively your mothers welfare. Acknowledge this has one primary factor... Her sense of security.
Sibling fighting - stop. What does your sister, who has volunteered as primary caregiver knowing that sacrifice is requited (as you have also acknowledged.) need from you? It may not be directly related to mom. Mom will rest easier if her children learn to watch out for and appreciate each other's care. Why does your sister need a sitter? Can you help with that? What else might mom do to feel useful? Cany you ask in your sister what her week looks like? How about your mom's week? Would your brother be able to research caregiving help, then fill out the paperwork, get answer's for your sister's concerns such as transportation? Basically can he not only find help but carry the ball as far as sister and mom need? Can he repair! Put in handholds, ramps, and take mom on outings?
You have the possibility of being the backbone while sister remains the hands if you're willing to become the strength for sister as well as mom. Before you begin, uuse that good mind to see how easily you wrote off your sister as trivial help for your mom. She knows your mom's schedule and appears to be her transportation and health advocate.
You need to believe your contributions impact positively your mothers welfare. Acknowledge this has one primary factor... Her sense of security.
Sibling fighting - stop. What does your sister, who has volunteered as primary caregiver knowing that sacrifice is requited (as you have also acknowledged.) need from you? It may not be directly related to mom. Mom will rest easier if her children learn to watch out for and appreciate each other's care. Why does your sister need a sitter? Can you help with that? What else might mom do to feel useful? Cany you ask in your sister what her week looks like? How about your mom's week? Would your brother be able to research caregiving help, then fill out the paperwork, get answer's for your sister's concerns such as transportation? Basically can he not only find help but carry the ball as far as sister and mom need? Can he repair! Put in handholds, ramps, and take mom on outings?
You have the possibility of being the backbone while sister remains the hands if you're willing to become the strength for sister as well as mom. Before you begin, uuse that good mind to see how easily you wrote off your sister as trivial help for your mom. She knows your mom's schedule and appears to be her transportation and health advocate.
Lots of changes have happened over the course of that time. Mom is now in a top-of-the-line memory unit, where she is safe and receives timely medical treatment.
We've moved her twice; the first time was to an independent living facility in late 2011. My sister, who always claimed to be SO worried about mom's emotional state, promised to be present when my brother had the conversation with mom about moving her; ultimately, she never showed for it. Sis even tried to move as many of the toys that were in mom's house as possible, hoping that my mom would still be able to babysit my niece. Eventually, my niece didn't want to visit her Grammy. It was so confusing about which adult to take direction from, that she became stressed about going over to visit without her parents there. Sis finally put an end to the babysitting, but I'm still sad that it took a toll on my niece to make it happen. When my sister announced that she and her husband wanted to seperate, her solution was to have her soon-to-be-ex-husband move into mom's house to get it ready for sale (it had been empty for a few months). My brother and I both said NO! That was the catalyst to get the house on the market. Her house was sold in 2012. I met with the realtor, negotiated the selling price, arranged for home repairs, and scheduled the inspections. I arranged for the storage unit when my sister couldn't decide what should and should not be given away. I arranged for a family member to pick up an antique organ. After mom's move, we incorporated the help of an at-home senior service to make sure she was still active and participated in events inside and outside of the facility. As her dementia progressed, we dealt with some serious issues; another resident was taking advantage of her sexually and financially (he stole jewelry from her and bullied her into buying things for him) and the facility's director was unwilling to step in. She was staying active by walking around the facility, but on more than one occasion, she had crossed some heavy lanes of traffic or walked down the street. We knew it was time to step up the level of care she was receiving.
We did lots of research on local memory care units and assisted living facilities. We were able to step up the in-home care while making our decision, and she's been with the current facility since September. The one saving grace we have is that mom has invested well and save her money. Although she never wanted it spent on her care, I am SO thankful that she planned well. Giving us options about what kind of care she can receive is such a gift and I'm so grateful that I don't have to stress about her running out of money (at least not to the degree that others do).
My sister's role in mom's care has diminished significantly. Even though she is the healthcare POC, the docs and pharmacy call me because sis doesn't return their calls or emails in a timely fashion. Ultimately, I think it's because Mom is different now. Because her personality has changed, and it's a one-sided relationship, my sister can't lean on her the same way as before. She doesn't get as much out of it. I'm sure a lot of my sister's blame and anger was coming from a place of grief, but it doesn't excuse the way she manipulated me. She's still making promises she can't keep: Mom has two timeshares. She agreed to take over the fees of one, and I the other. Now that it's time to pay, sis says she can't afford it. Looks like I'll be selling that one now. And she and her husband didn't seperate. They're still together. Who knows what would've happened if we had agreed to let him move into mom's house.
I still have a hard time balancing everything. In 2011, I had a one year old, a 6 year old and was working full time. I'm now working two jobs, trying to make myself more marketable in an unstable economy. I still handle mom's taxes, finances, calls from the facility, and manage the in-home caregivers that still come by 3 times a week to keep her active. I'm happy that my Mom is safe and will continue to take care of her as best I can.
I guess the lesson I hope that others learn from my experience is not to let the emotionally attached sibling fool you. In time, the logical and organized sibling will need to take over and make hard decisions. And lean on the professionals! Some of them are not perfect, but if you have the means to pay for good ones, they are worth their weight in gold.
I feel my brother must control everything and if I suggest something it turns into world war 2. I decided to praise him for everything he does.I truly think he needs that recognition for his self esteem. We have better communication since I have taken this path. My brother after our dad died 27 years ago devoted his life to mom and didnt make a life for himself. My mother created this unhealthy relationship since she didnt make a life for herself. People mistake them as a couple .My best advise is to show your sibling how much you admire their exceptional ability to do so much and if they need you you are always there.
Praise and compliments work better than trying to gain control.They need it more since they are not secure with themselves. Don't play into their game since they thrive on the drama of getting you mad and upset.
Stay strong and positive and realize you can tell your mom you love her and you know she is in good hands.
I might know how to do this already, just too tired to think. If anyone has simple answer that I'm overlooking, kindly put it in a Hug to me. Thanks.
Quite frankly, I'm also stunned that there's so little concern for the child who got caught up in all this. As a total outsider, what I see is tantamount to child abuse. "needs the 5yo to report back" .. what?? Children that age are still in fantasy land, and this makes it sound like the responsibility for the grandmother's welfare was in the hands of a 5yo. Really??
The other Ladee
I was VERY close with my sister and her kids. I am unmarried and the kids are the apple of my eye. They are grown. When dad got sick, I was willing maybe able to do more than sis. That was OK for the most part, but at times I felt cheated. When sis was inattentive, I covered and lied for her to spare their feelings. More was expected of me because i did not have kids...mind you hers were grown. i was nurturing a relationship with a great guy. Did nobody care that I find someone to grow old with. Was my career expandable? Specially considering, i was helping financially. I grew more resentful. One day, out of the blue after my beloved nephews graduation I received a loving note from the loving woman I knew as my sister. We renewed our relationship, she helped more and today she is baring a significant part of mom duties. Dad has passed.
Do what you are able and willing to do. Reject guilt. Respect your sisters contribution. This is all very personal there is no minimal required contribution.
I am so grateful sis and I made up. I wish you luck throughout this phase and a reconciliation.
Regards
L
really tough situations. After all, are not all caregivers dealing with struggle and stress on a constant basis?
Go in and make your voice heard. State firmly that you will not tolerate being shut up any longer. You have a right to participate and to serve. You'll be tested and they may try to manipulate you. Be prepared for that and decide how much involvement you truly want and ...what you are prepared to settle for. If there are
issues of safety here, then you owe it to yourself to speak up and stand up.
I had to really get 'in the face' of several of my father's doctors. I was really tough
with them because the doctor disappeared for several scheduled appointments.
I came on pretty strong...and for the most part it worked. I did it for my Dad...and
because as a caretaker we have to stand up against what is wrong. I think your
sister has some positive things to contribute and sure the granddaughter may
provide lots of smiles, but you are right to be concerned. It doesn't sound like
the best arrangement to be sure.
In some situations, asking for things doesn't work. TAKE control. If your focus is on serving, you will I believe find some level of success.
I recommend as a resource "The 10 Irrefutable Laws of Leadership" by John Maxwell. I've read it twice. The first time alot of it didn't sink in. The second time
I realize I've internalized much of it.
Good luck!
I used to tell our dad, you can't make me feel guilty for not feeling guillty.....
Instead of just saying to me, "I only want your brother to know my business", she made up stories accusing me of asking for money and wanting to take over her finances. none of this is true. So I can walk away with my head held high. I have given her five years to try and make amends and she does nothing.
Some on this site will say you owe your parents this or that just because. Well I think your parents owe you as well. It goes both ways. I will not feel guilty about my decisions and no one will make me feel that way either.
I asked him if he had anyone who would call him if something fishy happened with Mom. He told me, no why would he? I get a lecture everytime I try to ask questions or have any input. If I talk to Mom she tries to change the subject. They have both treated me like I am either a thief, a child, an idot, or all of these. Not talking to me makes me see red flags everywhere. Mom is very difficult and sometimes I think my brother has just given up but there is alot of "secret' stuff between them.
The way it is now is he has all financial power, I am in the dark, that is the way they want it but when the work of taking care of Mom, going to the hospital, doctors, sitting up with her when she is sick, etc. then he will be ready to "share" responsiblities. Let's see, he gets to write the checks and I get the dirty work.
And some people wonder why some siblings just don't get involved.
I think that each child in a family -- even identical twins, which we have -- has a unique relationship with the parents. This doesn't necessarily always involve acrimony or accusations and blame, but there are always differences.
After a recent family party (my birth family) my daughter-in-law said, "You are really different than the rest of your family, aren't you? Were you adopted?" No, all 7 of us have the same birth parents, but she's right that I'm odd man out. We like each other but beyond that we don't necessarily like the same things or have similar interests. When Ma was well (and a widow), my six sibling had more contact with her because they had more in common with her. They all play cards; I don't. My sisters could dish the celebrity dirt with her -- I don't know who they are talking about. My brothers can share her baseball enthusiasm. When I did things with her it tended to be taking her somewhere, like to a comedy, or on a train ride to see fall colors, or a 2-hour cruise. We could enjoy being together without a lot of interaction. I often drove her and her sister to see their family in another state, because I had more of a connection with that branch than my siblings did.
Now that she needs some help, I am very glad that four of them have picked up the bulk of the interactions. (One other brother is disabled from a car accident, and we don't expect him to do much directly, and the youngest is busy raising his young family -- his kids are all younger than my grandkids -- and while we'd like a little more contact between him an Ma, we don't judge.) Even if I wasn't overwhelmed with caregiving for my husband, I don't think I'd have as much direct contact with Ma as my sisters do, just because that is the nature of our relationship. I would take on more of the housekieeping and shopping tasks, though, if I could.
My point is that "different" doesn't mean "superior" or "worthless," it just means different.
Expecting each child in a family to have the same relationship with parents, the same skills and aptitudes and motivations for caregiving, is just not realistic.
No doubt some families have "deadbeat" members whose main interest in anything is what's in it for me. There are a lot of jerks in the world, and they all must belong to some families. But I don't automatically assume that is the case just because sibling don't agree on what is best for Mother, or on how much personal hands-on care they are willing to devote to Father.
My personal experience has shown me that some of the ones who are so angry at not being "helped" are simply upset because they do not know how to say NO....or think outside their own perception of how things SHOULD be done.... My oldest sib wasn't angry because I didn't help with our dad, she was angry that she couldn't do the things I was doing with out feeling all that debilitating guilt and shame.... I went to counseling for years to get past that, and she resented my freedom of will, my acknowledging my own limitations with our dad.... they needed his APPROVAL, I did not..... so with all that being said, to simplify my words here, there is usually such and undercurrent of sibling mess going on, that arguing or judging about a parents care has nothing to do with anything.... one of my favorite sayings is , " what is going on here, is not REALLY what is going on".... it always goes much deeper than who didn't take care of dad that day.....
And one of my observations on how we handle sibs, is how we respond or react to things said on this sight.... If someone jumps to conclusions and judgment, it pretty much says how they are in the world.....Sure we are all tired, edgy, and all the other words we use to describe ourself on here, but we are here to learn from each other....take what you need and leave the rest..... there are many voices on this sight, hunt and peck until you find some one that agrees with you, it's time consuming as there are many many people on this sight, but hey, we might all just learn something about ourself in the search....