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Hey, Happygo50 - since you claim to have so much more qualified experience with elders with dementia, and you seem to feel that it would be cruel to not include grandpa, why don't you send DMB a private message and YOU arrange to bring grandpa to the graduation and keep him "in line" for the duration of the ceremony?

Seriously, while I get the desire to include all family members, and you seem to think grandpa would be fine - even though you have no first-hand experience with this man, where I am sure DMB has - what happens, in the "off chance" (at least in your mind's eye) if grandpa DOESN'T cooperate at the graduation? Do you have any stellar advice for THAT little scenario?

DoingMyBest, you know your dad better than anyone of us here. If your gut feeling says not to even attempt this, then DON'T DO IT. Might he be mad? Maybe, but you know what? He'll get over it. And even if he never does, you will at least have seen this *HUGE* event in your daughter's life.

High School graduation is a very emotional time, not just for you, the parent, but also for your daughter! Both of my children, while they professed to not be able to wait until graduation, cried afterward. It's the reality of the end of childhood and the first step into adulting. If nothing else, your daughter deserves your undivided attention if she becomes emotional, without having to worry about a "grandpa meltdown". Go to her graduation with a happy heart, no grandpa and no guilt!
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Hopeforhelp22 Apr 2023
happygo - for clarity, since you said that "you have a family member, who has dementia, bipolar and schizophrenia, that you take places"...it would help a lot if you elaborated - such as, which family member is this...how old are they...are you the primary care giver.....and, how often are you involved.....and this family member - what places have you taken them to?

You're very confident in this, so as a learning tool, it would really help having more insight as to what specifically you do. Your thoughts?
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Good Morning,

There comes a time that what the family always used to do, things will be done differently this year. For example, most schools nowadays stream graduation ceremonies.

Or, better yet have photos taken with the graduate if they are nearby in State.

What I do now with my mother, was different a year ago. I am not going to make taking my mother out a spectacle. I am not going to throw my back out, drag my mother through a venue and worry about finding a bathroom.

People with Dementia do not like a lot of noise. It confuses them. You have to be honest with yourself. My parents met at a wake in the 1950's. My dad never missed a wake. Fast-forward Dad is gone, Mom is elderly and I simply send a Mass card or some type of condolence. I do not drag mother out to funeral homes.

Keep it simple, not a lot of fanfare. As the elderly age and become frail their life becomes smaller. Their environment has be thought out. I can no longer take my mother to the grocery store so she can walk up and down the aisles on her UpWalker Lite. It' takes too much out of her and right now it's become more of a worry than what used to be considered exercise and a coffee afterwards.

But I do take mother out locally in the neighborhood with the better weather. I have a physical therapist coming to the house. You have the make the changes as the disease progresses.

This is Graduation season and you asked but I wouldn't do it. Too much can go wrong. Although everyone has a cell phone with a camera on it. You can send a gift. Use Facetime whatever.

Keep it simple...don't feel guilty if you can bring your loved one to every event!
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BlueEyedGirl94 Apr 2023
Ireland - you make a great point that I think our resident "take Grandpa at all costs - everyone else's feelings on the matter be damned" propagandist is missing.

Something like a graduation - especially one of this size - could be very confusing and disconcerting for someone with dementia. The noise, the crowds, the length of time required. The frustration I'm sure they would feel - as well as the frustration their family and/or caregivers would feel trying to provide a safe environment for them in a place like a STADIUM would probably be very overwhelming.

On the low end- a college stadium can hold 30,000 people. Now I can't imagine that a high school graduation would draw that many people. BUT, they don't typically use a venue like that unless they have a large class (Otherwise they just do the graduation at their own school) So I'm betting there are at least 400 graduates. If everyone gets at least 10 tickets and uses them all you are looking at 4,000 people NOT counting the graduates, Junior Marshals, all of the teachers, superintendent, special speakers, and other county officials, and potentially band and chorus members. So you are looking at around 4,500 people.

That's not a small number of people even in a venue that size. What happens if grandpa manages to wander off? No one knows him but their family. He could potentially manage to get away from them enough in that venue that no one could find him, he could get outside of the venue. Confused by all of the noise, unfamiliar surroundings.

I guess my point is this - if just giving DMB and her daughter a well deserved day to celebrate such a wonderful accomplishment without making them feel guilty isn't possible for some people - maybe they should look at it from another point of view.

Maybe they should look at it as protecting grandpa by NOT taking him. Why put him in any potential danger. The family will be distracted. The entire situation is the perfect set up for something to go wrong. Why take the chance when you don't have to? Why, when he may not even pay attention and potentially distract everyone else - and be just as content to watch it later - would you subject him to that?
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Can you hire a caregiver for just that weekend?
We did that so my mother could attend her grandson's marriage.
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The short answer:

HE DOESN'T GO TO THE GRADUATION.

Have it available on Zoom or something so he can watch it at home / where he lives.

Yes: Expect that he will be upset. This is what / how he reacts. While some may be his 'M.O.' - his behavior may have more to do with brain chemistry changes. When this happens, you need to adjust your behavior and boundaries.

The 'best' way to deal with his upset-ness / outbursts is to provide reflective listening: "Yes, I realize you are upset." ... "We are disapointed to that you won't be able to attend."

Or

What I (might/) would do ...

Not mention it to him. Will he forget it?
The more you make a big production out of this event, the more he will react accordingly as he wants to be a part of the celebration, understandably.

Tell him it has been postponed due to Covid or something.
He doesn't need to know. And, you DO need to keep him in environments that he can handle, which may be very limited now.

It is VERY NICE of you to consider a dinner the night before.
You are VERY thoughtful in how you want to include him.

Your focus on the special day needs to be on the graduation / photo taking, etc.
He needs to stay home.

Gena / Touch Matters
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Most HS graduations I've ever attended have a limit on the number of guests each graduate can have. Even if your daughter's school does not have that guideline, you can always fib and say it does and there's a limit on number of guests allowed to attend. I have a daughter who's a junior in HS and I totally understand wanting to be able to enjoy the day and make it about her, and you should be able to. A few years ago, when my dad started declining, it became too hard to get him in and out of places, and he also had anger issues due to beginnings dementia that I didn't realize what it was at the time, but we started limiting time with him in public situations because it got to be so hard - I used the little white lies often to avoid drama. Do what you need to do to make the day special and memorable and drama-free for your daughter and your immediate family.
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"Dad, they have limited the tickets to immediate family only. I am really sorry we can't bring you to graduation, but you would have been very uncomfortable anyway. We will bring you over for the dinner we are having for our family to celebrate."

And don't forget to turn off your phone during the graduation ceremony in case Dad calls...
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