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Hospice at the beginning only sends a nurse once a week to check your husbands vitals and such, and aides to bathe him at least twice a week. As your husband gets worse the nurse will come more often. They will also supply all needed equipment, supplies and medications, and you will have access to their social worker, chaplain, and volunteers, but that is it.
I'm guessing you didn't completely understand their role in your husbands care, which could be because you didn't ask the right questions, or because things weren't explained to you properly, but either way, all the way until your husband dies, if you keep him at home, you will be responsible for 99% of your husbands care while hospice does the other 1%.
So yes sadly you are wrong in this situation, and instead should be looking into hiring some in-home help to assist you with your husband, or look into placing him.
Keep in mind too that when your husband is actively dying that you can have him brought to the hospice home for him to die where he will receive 24/7 care from hospice, and that too will be covered 100% under your husbands Medicare.

My late husband was under hospice care in our home for the last 22 months of his life and was completely bedridden, and I had to stay on top of hospice constantly to make sure that my husband was receiving the care that he deserved, which meant often calling the office to voice my concerns.
So don't be afraid to speak up to ensure your husband is also receiving the care that he deserves. And if your not happy with this hospice agency, hire a different one.
I wish you the very best as you take this final journey with your husband.
Helpful Answer (6)
Reply to funkygrandma59
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Talk to your Husband's Hospice Care Manager.

EXPLAIN you need more help.
ASK what options exist.

There may be a GAP between what you expect from the Hospice service - to what the Hospice service can actually provide.

They can point you towards other supports, to fill that care GAP.

It is very very hard to care for a person at end of life stage without a BIG group of people ie a large family with willing & able people, many volunteers or paid aides & nurses in shifts.

If home is getting too hard, ASK about alternatives.

Wishing you strength & peace as you need them.
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Reply to Beatty
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If you need time for yourself, can you hire someone? Check with your social services to see if they provide some financial aid.
In the meantime, your husband needs comfort medication and not antibiotics to prolong his life. Hospices provide grief councellors and it may be time to ask for one.
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Reply to MACinCT
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Antibiotics were included in my dad’s end of life care, I mean seriously, a zpac to contain a uti is actually comfort care along with the standard morphine, and seroquel they give you.

If your hospice is Vitas, I urge you to ,ove immediately to another provider.
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Reply to PeggySue2020
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Nana79 Aug 31, 2024
That is what I am fussing about is when he first got sick they should have gave him the antibiotics than. Not wait 2 weeks till it's so bad he has no strength. I thought they are supposed to make him comfortable and take care of him when he does leave me it would be from the cancer not because they wouldn't treat a infection once it was first noticed. Thank you for your comment. I think a lot has misunderstood why I am so upset. I feel like time has been shortened even more because they fail to treat the infection.
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You clearly do not understand end of life care. I believe that you may not understand that your husband is now dying. He is leaving you.

Yes, you are wrong in thinking you have a lawsuit.

You clearly are not accepting of the death and dying, of Hospice and etc.
You need to speak WITH HOSPICE now, not with a Forum of strangers. On the face of the little we can glean from a simple message to an online Forum you are in need of psychological counseling that is best addressed by A) Husband's medical team B) Hospice.

Please discuss with the ABOVE what you wish to discuss with us. They are aware of the patient, the diagnosis, the prognosis, and the family. WE ARE NOT. We can offer our sympathy. God knows that in the loss of the love of your life we DO offer our deepest sympathy. Like "thoughts and prayers" that is nothing compared to what you are currently facing in terms of loss. I am so very sorry. We can NONE of us imagine until we are there. I am 82. My partner is 84. We IMAGINE it all the time. And yet................we can have no idea.

I send to you my deepest heartfelt sympathy. Truly. I do.
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Reply to AlvaDeer
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Nana79 Aug 31, 2024
Yes I understand. My problem is once again they fail to treat the infection once it first started cause his system is already weak. I feel like them not treating him has took time away from us we would have had. Before he got really bad he could walk, setup, and eat. Now he is so weak and can't do any of that. When he does drink anything he still coughs and chokes and you can still get infection coming up. I understand has how many has said he is leaving me but he should have had more time of the infection was treated sooner. Thank you for your comment
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